Resources

Developed collaboratively, the Global Roadmap draws on the expertise of clinicians, researchers, industry leaders, family-led organisations and families from around the globe. Its purpose is to drive research towards effective therapies and better outcomes for families affected by Sanfilippo syndrome. Download the Global Roadmap below.

Global consensus clinical care guidelines for Sanfilippo syndrome are available to be used by anyone providing medical care, rehabilitative care or support services for individuals with Sanfilippo syndrome, and to help families navigate care with their health care providers. Download the clinical care guidelines below.