International Sanfilippo Syndrome Alliance
International Sanfilippo Syndrome Alliance
  • Home
  • Alliance members
  • About Sanfilippo syndrome
  • Resources
  • Latest news
  • More
    • Home
    • Alliance members
    • About Sanfilippo syndrome
    • Resources
    • Latest news
  • Home
  • Alliance members
  • About Sanfilippo syndrome
  • Resources
  • Latest news

ISSA Founding Members

Asociación Sanfilippo Barcelona (Spain)

Association of support for medical research and for parents and children with Sanfilippo syndrome.

Visit Asociación Sanfilippo Barcelona's website

Associação Sanfilippo Brasil (Brazil)

Aims to support scientific research for treatments or cures for Sanfilippo syndrome and improve quality of life.

Visit Associação Sanfilippo Brasil's website

Associação Sanfilippo Portugal

Dedicated to informing and supporting families and encouraging research into Sanfilippo.  

Visit Associação Sanfilippo Portugal's website

Cure Sanfilippo Foundation (USA)

Our mission is to advocate for and fund research directed towards a cure and treatment options for patients with Sanfilippo syndrome. 

Visit Cure Sanfilippo Foundation's website

Fondation Sanfilippo Suisse (Switzerland)

 Our mission is to bring care to children afflicted by Sanfilippo and their families.

Visit Fondation Sanfilippo Suisse's website

Fundación Stop Sanfilippo (Spain)

 Our priority is to improve and facilitate the lives of families suffering from Sanfilippo syndrome. 

Visit Fundación Stop Sanfilippo's website

Fundacja Sanfilippo (Poland)

 Our goal is to find a cure for devastating, fatal infant disease Sanfilippo syndrome (MPS III).

Visit Fundacja Sanfilippo's website

L’association Sanfilippo Sud (France)

Association of support for medical research and support for parents and children with Sanfilippo syndrome. 

Visit L’association Sanfilippo Sud's website

Sanfilippo Children's Foundation (Australia)

Our purpose is to drive research for a world without Sanfilippo syndrome.

Visit Sanfilippo Children's Foundation's website

Sanfilippo Fighters (Italy)

Our purpose is to stimulate attention and to raise funds for the search for a cure for Sanfilippo syndrome. 

Visit Sanfilippo Fighters' website

Sanfilippo Initiative (Germany)

Our mission is to support research and clinical activity to deliver a cure for Sanfilippo syndrome. 

Visit Sanfilippo Initiative's website

If you are interested in becoming a member of ISSA please get in touch.

Membership enquiry

International Sanfilippo Syndrome Alliance (ISSA)

Copyright © 2024 ISSA - All Rights Reserved.

This website uses cookies.

We use cookies to analyze website traffic and optimize your website experience. By accepting our use of cookies, your data will be aggregated with all other user data.

Accept